Resources and More Information
One of the quickest and easiest ways to find the answers to your questions about organ transplantation and donation is by looking on the Internet. If you do not have Internet access at home, you can go to your public library. There is a wealth of information available online. Below are a few good places to start.
The United Network for Organ Sharing (UNOS)
This site can help patients through the transplant process. It includes information about the waiting list, Organ Procurement and Transplantation Network (OPTN) policies, the matching process, patient and professional profiles and resources for information.
888-894-6361 | www.UNOS.org | UNOS Patient Website: www.transplantliving.org
Pennsylvania Gift of Life Donor Program
Gift of Life Donor Program is the nation's leading organ procurement organization coordinating more organ and tissue donors than anywhere else in the United States. Take a brief look at our 44-year history of saving lives.
800-DONORS-1 (800-366-6771) | www.donors1.org
Gift of Life Grief Workshop Series
These workshops will be facilitated by a bereavement counselor and are open to donor families and members of the community. Individuals may attend any or all sessions that are of interest. We are happy to refer you to programs for topics not included here, and welcome suggestions for future series.
National Kidney Foundation
800-622-9010 | www.Kidney.org
American Diabetes Association
800-DIABETES (1-800-342-2383)| www.Diabetes.org
US Department of Health and Human Services
This site is sponsored by the Health Resources and Services Administration of the U.S. Department of Health and Human Services and provides access to the Government’s information on organ and tissue donation and transplantation. Patients can find answers to frequently asked questions, public affairs and legislative updates, links to other websites and a glossary. There is also a section addressing myths about organ donation and information about various educational events and grant programs. You can download organ donation cards and brochures and order organ donation pins and bumper stickers to use as handouts for community activities to promote organ and tissue donation
A website with support and resources for people with kidney disease
The Scientific Registry of Transplant Recipients
This site contains information about the organization, what it does, transplant statistics and research resources.
Organ Procurement and Transplantation Network (OPTN)
This site educates, informs and clarifies some of the complexities of the organ transplant process for all those affected by or interested in organ donation and transplantation.
American Society of Transplant Surgeons
703-414-7870 | www.asts.org
American Society of Transplantation
1-856-439-9986 | www.a-s-t.org
Centers for Medicare and Medicaid Services
1-800-MEDICARE (1-800-633-4227) | TTY: 877-486-2048 | www.cms.gov
Living Organ Donor Advocate Program
NATCO, The Organization for Transplant Professionals
703 483-9820 | www.natco1.org
National Institutes for Health (Kidney and Urologic Diseases)
301-496-4000 | www.nih.gov
National Kidney Foundation
1-800-622-9010 | www.kidney.org | Living Donors
National Living Donor Assistance Center
1-703-414-1600 | www.livingdonorassistance.org
What Every Patient Needs to Know. Talking About Transplantation. United Network for Organ Sharing, 2004. Call 1-888-894-6361 or visit www.transplantliving.org.
Partnering with Your Transplant Team. U.S. Department of Health and Human Services, 2004. CalI1-888-ASK-HRSA (275-4772) or e-mail firstname.lastname@example.org.
Pharma Patient Assistance Directory. Describes programs offered by pharmaceutical companies to patients who need financial assistance for prescription drugs. Call 1-800-762-4636 to request the directory.