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Resources and More Information

One of the quickest and easiest ways to find the answers to your questions about organ transplantation and donation is by looking on the Internet. If you do not have Internet access at home, you can go to your public library. There is a wealth of information available online. Below are a few good places to start.

The United Network for Organ Sharing (UNOS)

This site can help patients through the transplant process. It includes information about the waiting list, Organ Procurement and Transplantation Network (OPTN) policies, the matching process, patient and professional profiles and resources for information.

(888) 894-6361 | www.UNOS.org | UNOS Patient Website: www.transplantliving.org

Pennsylvania Gift of Life Donor Program

Gift of Life Donor Program is the nation's leading organ procurement organization coordinating more organ and tissue donors than anywhere else in the United States. Take a brief look at our 44-year history of saving lives.

800-DONORS-1 (800-366-6771) | www.donors1.org

Gift of Life Grief Workshop Series

These workshops will be facilitated by a bereavement counselor and are open to donor families and members of the community. Individuals may attend any or all sessions that are of interest. We are happy to refer you to programs for topics not included here, and welcome suggestions for future series.

Learn More

National Kidney Foundation

(800) 622-9010 | www.Kidney.org

American Diabetes Association

(800) DIABETES (1-800-342-2383)|  www.Diabetes.org

US Department of Health and Human Services

This site is sponsored by the Health Resources and Services Administration of the U.S. Department of Health and Human Services and provides access to the Government’s information on organ and tissue donation and transplantation. Patients can find answers to frequently asked questions, public affairs and legislative updates, links to other websites and a glossary. There is also a section addressing myths about organ donation and information about various educational events and grant programs. You can download organ donation cards and brochures and order organ donation pins and bumper stickers to use as handouts for community activities to promote organ and tissue donation

www.OrganDonor.gov

Renal Info

A website with support and resources for people with kidney disease

www.RenalInfo.com

The Scientific Registry of Transplant Recipients

This site contains information about the organization, what it does, transplant statistics and research resources.

www.srtr.org

Organ Procurement and Transplantation Network (OPTN)

This site educates, informs and clarifies some of the complexities of the organ transplant process for all those affected by or interested in organ donation and transplantation.

optn.transplant.hrsa.gov

American Society of Transplant Surgeons

1-703-414-7870 | www.asts.org

American Society of Transplantation

1-856-439-9986 |  www.a-s-t.org

Centers for Medicare and Medicaid Services

1-800-MEDICARE (1-800-633-4227) | TTY: 877-486-2048 | www.cms.gov

Living Organ Donor Advocate Program

www.lodap.com

NATCO, The Organization for Transplant Professionals

1-913-895-4612 | www.natco1.org

National Institutes for Health (Kidney and Urologic Diseases)

1-800-891-5390 | www.nih.gov

National Kidney Foundation

1-800-622-9010 | www.kidney.org | Living Donors

National Living Donor Assistance Center

1-703-414-1600 | www.livingdonorassistance.org

Transplant Publications

What Every Patient Needs to Know. Talking About Transplantation. United Network for Organ Sharing, 2004. Call 1-888-894-6361 or visit www.transplantliving.org.

Partnering with Your Transplant Team. U.S. Department of Health and Human Services, 2004. CalI1-888-ASK-HRSA (275-4772) or e-mail ask@hrsa.gov.

Pharma Patient Assistance Directory. Describes programs offered by pharmaceutical companies to patients who need financial assistance for prescription drugs. Call 1-800-762-4636 to request the directory.